Wednesday, November 1, 2017

Not less-than. Never less-than.

The hardest part of raising two children with Cerebral Palsy is not and has never been the children with Cerebral Palsy. The hardest part of raising two children with Cerebral Palsy is the fact that we live in a world that refuses to adapt to anything beyond ordinary. And I have always -- always -- known that Benjamin and Mason were far beyond ordinary.






Mason began a beautiful gymnastics program when he was four years old. I will never forget the first performance for his little class. Mason came out and walked across the balance beam with his coach just holding one hand. It was an incredible feat for someone whose legs do not always listen to his brain and whose balance is far different than most gymnasts attempting to walk a balance beam.







The little crowd was comprised of mostly parents of the athletes, but mixed in were other adults, perhaps there waiting for their own children to finish their classes in the gym. When Mason turned at the end of the balance beam, bowed and smiled from ear to ear at the stands, that crowd went wild!








I will never forget how I felt. With tears streaming down my face, I remember being overcome with emotion because I could feel that this crowd -- this varied group of adults gathered in that gym in Pine Island, Minnesota -- weren't cheering out of pity. On the contrary, I remember feeling like they got it. I felt like they understood the extraordinary gift that was my four-year-old as he stepped off that balance beam.






In elementary school, Benjamin and Mason consistently had a classroom full of amazing kids. Claire's class always seemed to be filled with the trouble-makers -- or at least she had a higher percentage of those than the boys' classes.







At first, I thought, what in the world? Are they placing her in a leftovers' class -- does that really happen? For a half a minute, I thought maybe there was a "weak" teacher in each grade, and she got the shaft. 

But then one morning a light bulb went off: What if the difference in Benjamin and Mason and Claire's classrooms wasn't the delineation of pupils, or the assignment of teachers, but rather -- and this is life-changing -- could the difference be Benjamin and Mason themselves?





Hear me...I am not saying that my boys were such angels they made the classroom better....BUT I am saying that the fact that my boys were in those classrooms taught a lesson on empathy, compassion, and service that perhaps was lacking for Claire's classes.

 I am boldly saying that I think the kids were improved because Benjamin and Mason are not ordinary -- they are extraordinary.





But everybody doesn't see them as extraordinary. In fact,  a vast majority see them as less-than. And when the world operates from a viewpoint of less-than, then Benjamin and Mason are required to work harder to overcome not just the physical challenges their bodies present, but also the preconceived notions of peers, teachers, even loved ones.

Less-than means it is OK if you have to travel twice as far around a building to find an accessible door. We'll start the meeting without you.

Less-than means it is OK to only provide wheelchair space at the back of the church, auditorium, theatre. 

Less-than means you should be grateful space was provided at all.

Less-than means 99 percent of the parking spaces in a lot will NOT be accessible and no one will question it.

Less-than means you can board first on a plane, but will disembark last. And the flight crew will roll their eyes at having to wait on your wheelchair.

Less-than means that you are something to be pitied.



My boys are so much more than less-than.






This weekend Benjamin was selected to be on the Homecoming Court at Belhaven University. I choose to believe it is because his friends see the extraordinary. I choose to believe they wanted to celebrate that.





I watched the homecoming festivities with similar emotions to when 4-year-old Mason walked the balance beam. My heart rejoiced that these students understand, these students GET that Benjamin is NOT less-than but rather extraordinary!





And yet, perhaps because I have been walking this path of Cerebral Palsy for 20 plus years, I felt an overwhelming need to stand up and yell into the football stands:

"Can you recognize that you are more empathetic because Benjamin rolls into your classrooms? Can you recognize that your education is expanded and improved because this young man is in your midst?"

I wanted to ask them if they could feel the compassion growing inside themselves? Could they recognize the ability to step outside of themselves and care for someone extraordinary?

I wanted to beg them to hold on to all they are learning -- when you go into the business world, remember how improved life is when you have extraordinary people working for you!

When you are hired to direct a play, how much better is it to have an extraordinary cast member? 

When you prepare to greet a classroom of new students each year can you remember Benjamin and the effect he has on the world,  and be excited if a young person rolls into your classroom?













Parenting two children with Cerebral Palsy has never been the hard part. Convincing the world to embrace the extraordinary -- to embrace living in a world that is more compassionate, more empathetic, and more joy-filled -- is the part that is a challenge.





And yet, I am a firm believer in overcoming our challenges. I am the mother whose little four-year-old worked until his legs could balance on that beam after all. And I am the mother who cheered wildly as her 20-year-old rolled onto the football field to represent his junior class at Belhaven University.

And I'll be here cheering as one by one, place by place, we make the world a place filled with -- and celebrating -- the extraordinary!


Carol - The Blessings Counter

Sunday, October 22, 2017

Change.

"Change is the law of life. And those who look only to the past or present are certain to miss the future." John F. Kennedy

Green Hills Grille was an amazing decision-making spot. Some might think it was just a restaurant in Huntsville, Alabama. But for Wade and I, it was a haven, a place where we could focus on each other and the myriad of decisions facing our young newlywed-selfs. (It is not lost on me that part of the haven was most certainly the fact that by being in a restaurant, we were away from our computer, our phone, TV, etc. Today that is not the case....is it?)

When I was considering a job change, we found our booth, ordered our favorites (I still dream about the way they diced the cucumber for their salads.), and went through the pros and cons of leaving a job that required me driving to a neighboring city every day for one that would require me giving up some of my writing dreams (temporarily).

When he was contemplating going back to school in order to take the MCAT and apply for Medical School, we discussed the ramifications over dinner at Green Hills Grille.

And when the time came to accept admission to medical school, we weighed the pros and cons of each choice right there in that same restaurant.

If we still lived in Huntsville, and if the restaurant is still there (Google can find one in Nashville but has conflicting information pertaining to Huntsville.), Wade and I would have spent hours and hours there of late.

Ultimately, the decision-making wasn't really that hard. As a family, we believe our role is to make the world better for children with Cerebral Palsy. As such, we have decided that Wade will accept an incredible opportunity at the A.I. DuPont Children's Hospital in Wilmington, Delaware. He will be taking over from one of his mentors and one of the leading experts in the field, Dr. Freeman Miller, who is ready to retire.

And yet, there was certainly a con list, as with any decision. And leaving our beloved Mississippi will be hard. I am so grateful for this season here where I could become reacquainted with some dear friends, have my mama a mere three-hour drive away,  and enjoy having my college-kids almost within arms' reach.

We covet your prayers for the transition -- Wade will begin after the first of the year, but the kids and I will stay in Mississippi until the triplets finish college. There will be a lot of airports, commutes, and no doubt tears, in our future.

If you need me, I'll be here, searching the internet for a Delaware house with a front porch -- I can bring my own sweet tea!


Carol - The Blessings Counter

Friday, October 6, 2017

World CP Day!

There has been discussion in my house recently about whether or not I overshare on social media. I am fortunate that none of my little family are criticizing me but we have had some friends make comments that force the discussion and make me rethink things.

I do overshare. I know I do.

I can make few excuses except to tell you that the triplets were alive for 10 years before I joined Facebook, and eleven before I began to blog.

And so I spent more than a decade obsessing about the very best, most amazing, absolutely adorable Christmas card I could possibly create. Because see, I had that one chance to show you what Cerebral Palsy looks like. I had that ONCE a year chance to let you know how amazing it can look on a family. I had that ONE chance to spread a little CP education to my community -- my people scattered here and there and everywhere. But it could only spread knowledge as far as my address book reached. And only once a year.

And then Facebook.

Oh holy moly, I can snap a photo with my PHONE to show you what CP looks like. 

I can upload it immediately and have you experience a bit of our day living with CP.

I can wax poetic -- or something -- in this little space on the internet and hopefully one or two of you will walk away understanding something you didn't about this thing called Cerebral Palsy.

And so today, on World Cerebral Palsy Day, I want you to know that I have no intention of stopping. I searched for hope on book store shelves and thoroughly worked the internet in 1997ish desperate for anything that would show me what tomorrow (today) might possibly look like. I have to offer that hope to anyone who might need it today. I have to.

So today -- THIS is what Cerebral Palsy looks like:



















Basically, what I am telling you is that Cerebral Palsy is cute, adorable, smart, silly, dramatic, fun-loving, and so very handsome!

Happy World CP Day friends! (Don't forget to wear green!)

Carol - The Blessings Counter